Intellectual Disability/ Down Syndrome and Fragile X Syndrome

Intellectual Disability and Down Syndrome Student Name Institution Professor Name Course Date Intellectual Disability, Down Syndrome, and Fragile X Syndrome College of Education – Department of Special Education Typical and Atypical Development and Assessment Issues in Special and General Education SPE 461 – SPRING, 2024 • Weekly QUIZ & Activity #7 There are two (2) chapters assigned for you for this week. Be prepared to share your answers next week in-class. Chapter 14: Intellectual Disability Chapter 15: Down Syndrome and Fragile X Syndrome Look to the Summary Guide for each chapter after completing the reading. These guides are located in Module #7 for this week. Look to the Extension Activities for each chapter. Select one question from each chapter to answer. The options are provided for you here. Make sure that you address the question with supporting evidence and a reference to the chapter reading. Good luck! Chapter 14: Intellectual Disability Extension Activity Questions – Select ONE 2. One of the factors in deciding how intensively to investigate the cause of a child’s intellectual disability is the parents’ wishes in the matter. In a small group, discuss why this is the case. What if parents are uninterested in finding out the cause? Chapter 14 - Extension Activity Answer: Parents, very often, could be the strongest driving force when it comes to the finding of the fundamental factors that give rise to a child’s intellectual disability. It is one of the paramount issues to deal with (Batshaw et al., 2019). It is only due to the multiple ethical, emotional, and practical grounds. When parents do not cooperate and give little importance to finding the cause of the disease, then it binds the healthcare workers with more responsibilities, and ethical issues arise. Parental request for respect is an element of enduring autonomy and family-centered care and principles. Parents are the first-line carers, as well as decision-makers, of their children, and so their request on behalf of their kids in any medical investigation must be met with respect (Batshaw et al., 2019). Lack of transparency decreases people’s trust and confiscates the ability of caregivers and families to collaborate on an effective communication solution. The relationship between healthcare providers and parents is very valuable for communication and support. Consequently, the process could sheer up parents who have some information on the child’s intellectual disability. The process of screening tests, being faced with potentially troubling news, and contemplating the deeper questions of the diagnosis may result in severe emotional distress in parents (Batshaw et al., 2019). Parents could undergo emotions such as feeling guilty, blaming themselves, and anxiety about their child’s future, after which they might decide to go further with the examinations. Apart from this, taking into account their emotional preparedness and offering various types of assistance (including counseling) are the principles that have to be followed in such kind of cases. Besides, the values of the family and the religion come to lend support to parents’ views about investigating the roo...